Sunday, May 1, 2011

A new week, a new month

    Monday marks the end of spring break for the Sawyer family. Not a moment too soon, either. Savannah goes to 6th grade camp and everyone else goes back to school, including Emily.
    We made the decision to put Emily into an early intervention pre-k class after learning of her diagnosis. There would be so many more things available to her there that are just not available to her at home. It wasn't an early decision either. Like so many others we have had to make, we wanted it to be the best one for her, not only from an developmental standpoint but a quality of life one as well. She just turned 3, and was diagnosed with a terminal illness. Plenty of people said I should keep her at home, let her spend time with family and enjoy the "best years" with her. Advisors said to put her in school in get the most into her head as we can, trying to get her to learn as much as possible before things start to fall off. It is amazing how well other people know how to best care for your child!!!
    In the end the decision was made, that after taking a "tour" of the school that we would put her in an early intervention class. There there is lots of self directed activities all supervised, of course. They get a good breakfast and lunch as well as a nap if the kids decide they want one. They get to play with all kinds of kids, and the playground is awesome.

It was the best move we have made!!

    Emily looks forward to the bus every morning, she even helps to put her seat belt on. The teachers say the is so adorable and artistic. I love her artwork :) The best part? All that energy is GONE!! There is no way I could build a playground like theirs in my back yard. When she gets home she is happy, and enjoyable to be around. She looks forward to dinner, and I don't have to give her so melatonin to help her fall asleep. She likes the structure that school brings. I like the peace it brings. Win/Win if you ask me!!

On May 5th, we have a family day at the school. Savannah will be gone but I'm gonna let Fallon, Ryan and Daddy go with us to play with Emily and have lunch at school. It will be a blast, I am sure. Pictures and details to follow!!

On future posts:
Spring Parents Day
Of Medicine and Trials
A special friend celebrates her 15th birthday!!

Stay tuned!!

2 comments:

  1. I am so glad to hear that Emily loves going to school! I look forward to reading more on this blog post. What a great idea!
    Jenny Mendonca :)

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  2. Love your description of what it is doing..the lazy garbageman is so easy to understand! Our Em's our sisters in this horrific battle, and they are surrounded by amazing love and support! Love school for our Em as well, the best choice we made and no looking back. Struggles come and go, and more follow, but you have love and support from more people than you'll ever know. Now if you'll just move from the wee ends of the Earth, we could actually meet!!! xoxoxoxo Danielle

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